Sunday, November 22, 2009

FOP-Disorder {Fibrodysplasia Ossificans Progressiva}



Tonight I was watching the Discovery Health Channel & I came across a episode on FOP that I found interesting so I felt like I wanted to share it with my fellow readers.


FOP Disorder {Fibrodysplasia Ossificans Progressiva} is a rare inherited connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present, such as the ligaments, tendons, and muscles. This disorder causes the bodies skeletal muscles and soft connective tissue to undergo a metamorphosis, a transformation into bone, progressively locking joints in place and making movement difficult and impossible. As the disease progresses, there may be other skeletal malformations and the abnormal development of bone may lead to stiffness in affected joints such as knees, wrists, shoulders, spine, and/or neck. Its almost as if your body is a prison & your skeleton entraps you.














Its stories like these that should make everyone count their blessings. People spend so much time complaining about what they don't have, instead of being thankful for the smaller things in life. Like in the case, the ability to walk. I'm sure people with this disorder would give anything to be normal, instead they keep their faith & have strong "Wills" regardless their circumstances.



EVALUATE YOUR LIFE PEOPLE!!! I KNOW SOMETIMES IT FEELS LIKE YOU HAVE THE WEIGHT OF THE WORLD ON YOUR SHOULDERS, BUT ITS FOLKS WITH WAY WORST SITUATIONS THAN YOU. WHEN THOSE TIMES COME WHEN YOU FEEL LIKE GIVING UP, JUST REMEMBER PEOPLE LIKE THE ONE'S YOU JUST SAW IN THOSE CLIPS & HOW THE STILL WANNA LIVE GIVING THEIR CIRCUMSTANCES.


THANKS FOR READING....B.JAMES

LOVE IS LUV....

7 comments:

  1. Thank you so much for your blog. It is true that we must live our lives one day at a time and appreciate all that we have.
    FOP is very rare and affects only 500 people in the world. To learn more about FOP, please visit www.ifopa.org or www.haydenshope.com.

    Best of luck on your acting career.

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  2. @Megan Pheif...Thank you so much for taking the time out to read my blog & I so glad I was able to touch you with my blog, May GOD bless you & your child....

    Love is Luv....B.James

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  3. Very interesting post, I am a nurse and I educate people on topics that many of us are un aware of and this is one of them. Keep doin what you do and when you make it to hollywood don't forget about your twitter friend moe674.
    much love

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  4. Here is some additional information about the "genetics" of this condition that was written by our Genetic Counselor and other genetic professionals: http://www.accessdna.com/condition/Fibrodysplasia_Ossificans_Progressiva/151. I hope it helps. Thanks, AccessDNA

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  5. Hypatia LópezMarch 4, 2010 at 11:10 PM

    This is very important B. James, thank u for make time to share this information with people, no words...

    HL.

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  6. I know that this is a bit left field but about 6 years ago I watched a documentary on this condition. About a week before that I had watched one on the Thalidomide drug being relicenced in Mexico for the treatment of Leprosey. I remember thinking that if Thalidomide inhibited the growth of new blood vesels it might be helpful in preventing the ossification around injured areas and flair ups.

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  7. Do what. I was ordered to be destroyed, but the man that created me sent me off into the world to live.
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    Do what. I was ordered to be destroyed, but the man that created me sent me off into the world to live.

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